Dating With Breast Cancer

Dating is hard in today’s world, but try dating with cancer. There are so many questions on how to bring up the subject of your diagnosis when meeting someone new. Questions like, should I tell them that I have cancer? How do I explain that I may not feel well sometimes and may not want anyone around? How does a young woman explain, “Oh by the way, I only have one boob?” How do I explain I am menopausal at 36 or that reconstruction is NOTHING like breast implants?  

At the time of my diagnosis in November of 2015, I was fortunate enough to have a wonderful boyfriend by my side. We had started dating in July and he moved to live closer to me that October. When I was diagnosed the following month with breast cancer, I ended up quitting my job because I couldn’t afford the insurance they offered. I was able to get on medicaid while unemployed. Two weeks after my diagnosis, I had a mastectomy followed by chemotherapy, radiation and the removal of my ovaries and fallopian tubes. As a single mom, my boyfriend became our sole provider and he didn’t even live with us! The car payments, rent and bills for both of us really took a toll on our relationship. Not to mention the emotional toll from him having to provide me with confidence, strength and love all the time. He also had trouble understanding why I didn’t want to hang out, which was because of my treatment and not our relationship. We ended up taking a month apart to destress from our new relationship.

It was during our month apart that I performed an experiment to see what men really thought about dating a woman fighting breast cancer. I went undercover on the website Plenty of Fish using the name “Radioactive,” which seemed fitting since I was undergoing radiation at the time. I had four men reach out about dating me at once – so don’t give up hope ladies!!  

Later, I returned to Plenty of Fish and did my own outreach. I messaged four men: a postman, an artist with no car, a factory worker with a harley and an engineer. Each returned my messages and even wanted to meet.

I found that the easiest way to date is to be honest. I didn’t hide my diagnosis. In fact, I threw it out there for the world to see! In my profile. I wrote about my breast cancer and that I was in-treatment and looking for a fresh start. Later on in my messages with the men, I told them about being menopausal with one boob and that I had no hair and eyebrows. Even my profile pictures were current showing that I was bald. I didn’t hide a thing and I was amazed with their responsiveness.

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Soulmates!

Remember, you really can date while fighting breast cancer. You deserve to have someone who loves you and treats you like the Queen that you are. Be strong and realize you have the right to happiness, ladies, more than anyone else. You need to throw yourself out there and give it a shot! I promise you have nothing to lose whatsoever and the problem will be you don’t like them, not the other way around.

This experiment helped me learn that the problem was never really mine in the first place. I decided against meeting the four men I was messaging on Plenty of Fish because I wasn’t over my ex-boyfriend. I realized there was no one on earth who understood me better. He’s my soulmate and I look forward to marrying him one day.

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Do you have dating advice to others recently diagnosed with breast cancer? We’d love to hear it! Share your thoughts in the comments below.

For more tips on relationships and other important topics, download the free Newly Diagnosed Navigator!

You can also connect with other women currently in-treatment from the comfort of your home through YSC’s Online Video Support Groups, starting August 1st. Topics to be discussed include treatment sides effects, anxiety, depression, relationships and coping.

Don’t forget to keep the conversation going about dating on YSC’s Private Facebook Group, a safe space to build community with those who understand. You can talk to other survivors, ask questions, share articles and make connections!

 

 

 

 

 

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The Perfect Way to Connect from Home

Nine months ago my life was forever changed when I got the phone call confirming all three breast biopsies were malignant. A few days later, a pet scan confirmed that my breast cancer had spread to my liver. In that moment, my world turned upside down and my perspective on life was forever changed.

Tami Bowling w/ daughtersI was looking for a way to connect to other young women and was so happy to learn of the YSC Online Video Support Groups. As a 42 year-old mother of two young children, it’s hard to get a babysitter and leave the house, so this was the perfect way to help myself right from my home. It was so helpful to see the faces of the other participants while relating to their struggles. Each week, the moderator covered different topics and the participants offered different perspectives. It was helpful to know that I was not alone and that there is a way to live happy, despite breast cancer and metastatic disease.

Here are a few key takeaways from the sessions I attended:

 – Life is 10% of what happens and 90% of how you react to it. Take it day by day and conquer each battle one day at a time. In the meantime, smell the sweet roses along the way.

 – Your faith has to be stronger than your fear. Look in the mirror and tell yourself that you are strong and that you are beautiful.

 – Life is really about relationships. The relationships you have with your friends, your family, your work colleagues and yourself. It’s too often that we just get through our days without doing what we really want to do. I encourage you all to write down your dreams, both big and small, and set forth to make them happen.

I’m still terrified that I may not live a long life, but thanks to my support group I’m more determined than ever to live a meaningful, happy life.

***

Good news! You can register for the next YSC Online Video Support Group sessions! We currently offer 3 different online video support groups that meet once a month. Register for the one that’s right for you: In Treatment, Metastatic or 30 and Under.

Each group is professionally led and you can drop-in on any group at anytime as they run continuously through June 2017.  In Treatment, Metastatic or the 30 and Under group.

In Treatment: 1st Monday of the month
7:30pm-8:30pm EST (4:30pm-5:30pm PST)

30 and Under:  2nd Wednesday of the month
9pm-10pm EST (6pm-7pm PST )

Metastatic: 1st Monday of the month
9pm-10pm EST (6pm-7pm PST)

(Blog updated as of July 15, 2016, originally posted on January 22, 2016.) 

 

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15 Ways You Can Help a Young Woman Diagnosed with Breast Cancer

Hearing a young woman you love has been diagnosed with breast cancer can leave you feeling helpless. You may not know what to say or understand what she’s going through, but there are ways you can lend a much needed helping hand. Here are 15 ideas to help get you started.

1.) Stay in touch.
Even when you don’t know what to say, keep in touch. Send a card, drop an email or text. Just saying, “I am sorry you have to go through this, but I am thinking of you” can brighten her day. Continue reaching out even after her treatment is over as she begins her “new normal,” which is often scarier than the initial treatment phase.

 2.) Keep people updated.
Keeping family and friends informed can be overwhelming, offer to take on that role. MyLifeLine.org has a free service for cancer patients, where you can easily post the latest information and loved ones can leave notes of support. CarePages is another good resource.

3.) Help get dinner on the table.
This can be something you prepare or pick-up. Be sure you ask if there are any foods to avoid. Gift cards to favorite restaurants also work. You can easily help organize meal deliveries with an online scheduler like Lotsa Helping Hands where people can sign up to bring meals. If she’s not up for visiting at meal delivery, have her place a cooler by the front door.

woman-cleaning-floor-with-vacuum4.) Be a treatment buddy.
Accompany her to a treatment session and keep her company.

5.) Assist with household chores.
Get a group of friends to volunteer to help with laundry, cleaning the house or collect money to help pay for a cleaning service.

6.) Watch the kiddos.
If she has children, she might need help with childcare during treatments or just time for a nap. Take the kids off her hands for a few hours and help ease her mind.

7.) Be a Wig/Hat Shopping Partner.
If she will lose her hair from treatments, offer to go wig or hat shopping when the time comes. A friend will let you know if something looks fabulous or if you should put it back on the shelf.

pick up prescription8.) Run an errand.
Do the grocery shopping, pick up a prescription, drop the kids off at school, anything that can make her life easier.

9.) Provide some entertainment.
She may have a lot of down time, so help her get lost in good books or movies. Purchase an online movie membership like Netflix, so movies can easily be downloaded or shipped to her home. If she is an avid reader, buy her some books, give her a gift card to download books or order them online or check books out of the library for her.

thank-you-515514_960_72010.) Make airport runs.
Taking relatives to/from the airport can be a life saver.

11.) Help with writing thank you notes.
It can be hard to keep up with these, especially if treatments are brutal on the patient. So, if it she isn’t up to the task at the time, keep a log, so that she can look back through all of the kind gestures when the fog has lifted.

12.) Throw her a party.
There are many ways to have a little fun while helping her go through a hard experience. If chemotherapy will bring hair loss, she might enjoy a hat party (scarves and caps are great, too).  Or throw a celebration party when she hits a big milestone (like the end of a treatment).nails done

13.) Plan a pamper session.
An easy way to perk her up is to take her out for a pampering – a facial, manicure or pedicure. Just make sure she is at a point in treatment where there that is okay.

14.) Send a unique gift.
It doesn’t have to be expensive. Maybe a photo of a favorite memory or something that will grow (like a plant or tree) so that she can see how far she has come.

15.) Do something for the primary caregiver.
Take them out for a drink, a special pampering, a ballgame or something they would enjoy. It’s a rough time for them as well!

Did you know that YSC developed tips for caregivers including organizing help and advice? It’s important that supporters take care of themselves. Check out some of these useful resources and tips to ensure you’re receiving the crucial support you need to help you in your vital role as a co-survivor and caregiver.

– Caring For You
How to Help
Handling Finances
– Get Involved
Caregivers’ Bill of Rights

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Categories: YSC SYNC - Survivors

Conferences Made Just For You

Whether you’re newly diagnosed, living with metastatic disease or several years out from diagnosis, YSC’s conferences are designed just for you. Our one-day and three-day conferences help to empower and connect you to a larger community of young survivors and co-survivors.

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Some featured items include 100% silk cover-up, adult coloring book, a bandanna, Way to Grow hair kit, lubettes and a sleep mask!

Since launching our new conference program in 2015, we’ve hosted one-day Regional Symposia in the Northeast, South and Midwest. Our three-day National Summit was held in Houston and Atlanta! Now we’re super excited to start planning the next Regional Symposium and National Summit – this time on the West Coast. That’s right, we’re taking these incredible and important programs to California!

Each conference covers a wide range of topics most relevant to young women affected by breast cancer, including emotional wellness, nutrition, intimacy and relationships, treatment side effects and practical matters.

Right now, you can SAVE YOUR SPOT for the upcoming Regional Symposium on November 5 in Long Beach, CA. Secure one of the limited seats for this one-day conference now and you’ll receive $25 off registration and first dibs on free hotel rooms. Plus, the first 25 people to sign up and attend will receive an awesome swag bag worth over $100 featuring items from Kitt Allen, Ford Warriors in Pink, Babeland, AnaOno, BH Cosmetics and Not Your Mother’s.

We’ve learned a great deal already from the inspiring experts who speak at our conferences. Listen to some amazing sessions from past events and get a taste of what you can expect in California.

 

AliSchafferFinding Strengths with Your Partner After a Breast Cancer Diagnosis
Speaker: Ali Schaffer, LCSW, is the manager of Patient and Family-Centered Care at the Vanderbilt-Ingram Cancer (VICC) Center.

Relationships are a lot of work, even without a breast cancer diagnosis. Ali offers advice on how to navigate a relationship with your spouse, partner or significant other after these changes in your life. Explore the unique needs of partners facing breast cancer together and learn about tools and tips that are helpful to build stronger relationships during a difficult time.

Audio is available here, which can be paired with Ali’s PowerPoint Presentation.

The Ins and Outs of Early Menopause
Speaker: Jenny Lyman, MD, has been practicing obstetrics and gynecology since 2001. Her clients range from teenagers to post-menopausal women.

Dr. Lyman hosted this workshop for women with questions about early menopause after their breast cancer treatment. She spoke about important issues, such as what happens when you’re propelled into early menopause and how management of side effects can ease your comfort.

Audio is available here, which can be paired with Dr. Lyman’s PowerPoint Presentation.

 

Managing Fear of Recurrence and Anxiety
Speaker: Julie Larson, LCSW is a psychotherapist with a private practice in New York City. In her practice she works primarily with people under the age of 40 around issues of wellness, loss and life transitions.

Julie discussed how a breast cancer diagnosis may affect you emotionally and how to cope with psychological challenges. She explores what exactly are: fear of recurrence, post-traumatic stress disorder (PTSD) and anxiety. Together, we gained greater understanding of these feelings and learned how to better manage mental health. We also hear about the importance of receiving peer or professional support and where to find these resources.

Audio is available here, which can be paired with Julie’s PowerPoint Presentation.

Best Communications Practices for Co-Survivors
Speaker: Julie Larson (as noted above)

We have conference sessions and resources for co-survivors, too. As a co-survivor of a young woman diagnosed with breast cancer, you may fill many roles in order to offer support. It is often overwhelming and sometimes strains the relationship. Julie Larson explores best communication practices so that you can adequately express concerns, questions and words of support. Julie shares tips to best help yourself and your loved one communicate effectively and meaningfully.

Audio is available here.

 

You can find other audio and video files from past conference on our website in the Multi-Media Learning section.

 

 

 

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Categories: YSC Conferences

Six Healthy Summer Recipes

We love Summer here at YSC and we’ve all been taking advantage of the wide variety of delicious fruits and veggies that are available now. Below are just a few of our favorite summertime recipes for you to enjoy:

Photo: Johnny Autry; Styling: Mary Clayton Carl

Photo: Johnny Autry; Styling: Mary Clayton Carl

 

Tomato, Squash and Pepper Gratin from MyRecipes.com
I love summer with all of the fresh veggies! My family and I made this recipe last weekend with big, beefy yellow tomatoes, fresh basil from our yard and bread crumbs of our own making. You can also substituted almond milk for the 2% listed on the recipe. It is yumzie!
– Jean Rowe, Associate Director of Survivorship Programs

 

Megan’s Fruit Salsa
This is one of my favorite summer recipes! It’s an easy and refreshing fruit salsa served with homemade cinnamon tortilla crisps. It’s also great with regular tortilla chips. This is a recipe from my official family recipe book!
– Megan McCann, Associate Director of Programs

 

Farro salad

Farro Salad with Peas, Asparagus and Feta

 

Farro Salad with Peas, Asparagus and Feta from Epicurious
This is one of my absolute favorite summer salads to make! It’s great for a cookout or picnic.
Maggie Nicholas-Alexander, Program Associate

 

Kale, Tomato and Lemon Zest One-Pot Spaghetti by Anna Jones
This is a super duper easy, healthy and delicious recipe. In fact, this Anna Jones cookbook is great for vegetarians. Everything featured is delicious and easy to make.
– Grace Cook, Regional Field Manager

 

 

 

Watermelon Feta Mint Skewers from Bites of Bri
These skewers couldn’t be easier to make and they’re so tasty! The salty feta works wonderfully with sweet watermelon and a bonus if you grow your own mint.
– Mary Ajango, Director of Community Engagement

 

Breakfast Tacos

Breakfast Tacos –  almost too pretty to eat!

Jaci’s Breakfast Tacos
I’m a huge fan of breakfast – probably my favorite thing to make. Breakfast tacos are super easy and quick to cook. Plus you can feature your favorite healthy toppings. These breakfast tacos are just two flour tortilla with scrambled eggs, fresh arugula, grape tomatoes and caramelized onions. The onions are really the star of this dish! Throw on a dash of hot sauce and enjoy.

Tip for caramelizing onions: I use an equal mix of butter and grape seed oil (it’s a little healthier, but still super yummy). Also, be patient as they brown on very low heat. When they start to turn brown, throw in a pinch of sugar and a splash of balsamic vinegar. Be ready to serve these right away because they get can get crispy quickly from the sugar!

 

What’s your favorite Summer recipe?! Share it below for others to enjoy!

 

 

 

 

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Categories: Taking my Body Back

Summer Safety Tips

Summer is finally here! Today is a good opportunity to remind us all about recommended precautions so that we can enjoy the season and avoid risks that accompany warm weather.

Here are a few tips and reminders to take good care of ourselves:

Stay hydrated. We all need more when it’s hot outside. Jazz up your water with lemon, lime or fresh fruit for a tasty and refreshing treat! If you wish, keep track of your water intake with a free app.  

Sunscreen Protect yourself while outdoors. A number of medications warn to keep out of the sun for extended periods of time, so be sure to double check labels. When you are in the sun, wear a hat and sunscreen (one that provides broad spectrum coverage). Here is more helpful information on sun safety.

If lymphedema worsens during warm weather, learn here what will help and what to avoid.

Take advantage of the growing season by eating fresh fruits and vegetables! Find your local farmer’s market here.

If you love gardening and the outdoors, wear gloves and other safety gear to avoid cuts, scrapes and insect bites. Here’s a great guide to avoid insect bites this summer!

Exercise offers many benefits, but please be safe when engaging in physical activity, especially when outside where you can easily overheat. Check out a few exercise safety tips here.

Remember that it is a gift to yourself to say “no” if you just want to stay home and relax. While receiving invitations is a compliment, honor when you aren’t feeling up to it.  

Children are often provided with many fun opportunities during the summer while school is out. If you are feeling overwhelmed with the idea of planning, ask for help and know that friends and loved ones are ready to assist.  

Summer is the perfect time to relax with activities you may have delayed like reading a book or beginning a nourishing hobby. Take advantage of the longer days!

Whether or not you’ve tapped into YSC’s resources, know that they are available to you when you’re ready: .

–  Talk with someone one-on-one through SurvivorLink.

–  Meet in-person with other young survivors through your local F2F group.

 Chat with other young women from the comfort of your home through the upcoming Online Video Support Groups, starting August 1. There are three available including 30 and Under, In-Treatment and Metastatic.

Our Community Boards have many forums and are on a 24/7 platform.

 

 

 

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Categories: Taking my Body Back

Nominated Cancer Kween

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The Cancer Kween and her Queen.

“Man, it’s a good thing that we’d been together for over 6 years because HOW could I ever explain this to anyone else?!”

Yup, that was the first thought that ran through my mind when I was told I had to have a mastectomy. The idea of cancer killing me was something I never initially thought, probably because I hadn’t fully processed what it meant to have breast cancer. I mean, cancer couldn’t be all that bad considering how my grandmother had beat it a few times. Dying was really the last of my concerns! But the thought of ever being single again and having to stop, what I would assume would be a great moment, to explain the “hockey stick” scar and the one missing breast replaced by a sweaty sock seemed unbearable!!

My partner and I had been together for some time before my breast cancer diagnosis, which is why I felt much better about my decision to have a mastectomy.  I felt like she would be the last person to care because she had seen my body backwards and forwards, so what would it matter right?!!? I discussed my decision with her and she reassured me that our relationship and partnership as well as her love for me and the way she looked at me wouldn’t change. It’s important to note that although we’d been together six years prior to me diagnosis, you’d think we had just met. Needless to say, our sex life wasn’t lacking in any area and I wasn’t going let losing one or both of my twins effect that area either… or so I thought!

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My Queen comforting me through treatment.

After surgery and during treatment I did my best to remain the Kween that my partner had held me up to be. She had always referred to me as her Kween because in our relationship I was her provider. I was the one who would have things under control and reassure her that all was safe in the Queendom, as we knew it. I was her rock and now I was a wounded Kween. I was broken mentally, spiritually and, most importantly, physically! I was less than a KWEEN!

I went from “Man, it’s a good thing we’d been together over 6 years!” to “MAN! It’s a GOOD thing we have been together over 6 years because who would EVER want me now?!”

Well, she did! AND, she made it a point to let me know it everyday. When many others would have and did give up on me, she didn’t. She nominated me her Cancer Kween and I gladly accepted.

 

But with the nomination came the compromises!

1.) We agreed that as her Kween, I would be safe at all times. I could let go and trust her to handle things. In turn, I had to agree to let go of control, which can be hard due to my more dominant demeanor.

2.) We agreed that the “Pre-Cancer” Kween was gone as we knew her. She assured me that she would accept the “new me,” however or whoever that may be. In turn, I agreed to let her in on all the new things, good or bad, I was learning about the “new me.”

3.) We agreed that the communication in the Queendom could not and would not be broken! It’s essential that we communicate during our survival journey. I agreed to not only communicate with her about my feelings, hopes and dreams, but would also communicate with my doctors on these things so they’d understand our plan and help us work towards it.

IMG_2456I would be lying if I said that things hadn’t changed, but things change in all relationships. And people change, whether it has anything to do with cancer or not. The one thing that changed the most for me was my new found respect for my role now that I’ve been crowned her Cancer Kween.

Remember, in all great battles the “Queen” plays a vital role that leads to victory! My cancer battle would have been completely different in the history of my life hadn’t it been for the support of my partner, my Queen!

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Thank you Nikki for sharing how breast cancer impacted your relationship with your partner and Queen.

We understand that breast cancer greatly impacts relationships from body image and intimacy to communication with your significant other. Sometimes connecting with other young women affected by breast cancer and sharing your own experiences can be helpful.

Below are a few resources to connect with others:

Connect Online through community forums, online video support groups or the Private Facebook Group

Connect In Person through your local Face 2 Face Network

Connect One-on-one through SurvivorLink

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Let’s Talk About Foobs

Dana-Donofree-of-AnaOno-Intimates_Photo-Credit-Nikki-Riley-PhotographyDoes anyone want to talk about foobs?

Sure, everyone wants to talk a lot about boobs. When am I going to get them? How big are they going to be? Some want bigger, some smaller, some have Instagram accounts full of selfies in body-con dresses with puckered lips and padded bras because hers are just right.

They are retweeted, shared and liked every October when college students go all Girls Gone Viral using their perky, healthy breasts as a catalyst for disease awareness.

But, foobs are not boobs.

When you get breast cancer, boobs are (in general) lopped off and put out for pick up on hazmat day.

That is, of course, after lengthy discussions about exactly what to do with them. Should we keep one, get rid of one? Should we just get in there and cut the vagrant out hoping what ails it does not spread? Do we rebuild? How do we rebuild? They are pressed flat between plastic, squeezed, needled, examined, pinched, lifted, drawn upon. They are touched by more strangers than heirloom tomatoes at a farmer’s market.

And then, radio silence.

Once we make that decision, they’re never to be spoken of again.

And I want to talk about foobs. I have wanted to talk about foobs since I arrived home with tubes and bulbous devices sticking out of my sides. I have wanted to discuss their squareness, their hardness, their alien presence underneath my Marshalls clearance robe; the only thing my mom could find on such short notice.

Because, well, I didn’t know anything about foobs. Because no one talks about it.

I suppose I shouldn’t say no one. Bring up the word reconstruction in a cancer klatch and everyone will begin to clamor about their experience or opinion on the subject. Bring up the word mastectomy in conversation on say the D train and watch how men and women who’ve never had to make such a decision (or known someone who had) instantly stand further away from you.

Dana-Donofree-of-AnaOno-Intimates3_Photo-Credit-Nikki-Riley-PhotographyWe need to be able to have these conversations. Not just between survivor sisters, BFFs and spouses, but as a collective societal whole. Because the “pink ribbon get on with my life” breast cancer does not happen to everyone. Because even though global media has shared beautiful black and white portraits of women flat and scarred, social media bans images of reconstructed breasts. Because when I walk into a boutique looking for a summer sundress, no one can tell what lies beneath is nothing but silicone and skin — a sensationless, rock-hard permanent prosthetic that likely won’t agree with half of the fashion options available to me.

I want women to know they are not alone. I want them to know someone else understands that anguish, that feeling of loss and the nagging suspicion they are somehow a broken doll.

Of course, I get it, this is not a new subject, per se. But it is a clandestine subject all the same. We can talk about breasts (and see them) ad nauseum. We can celebrate scars and feel empowered by women who choose to remain flat, but reconstructed breasts seem to give people the heebee jeebees.

You see, I recently pitched my intimates line, AnaOno, to a room full of savvy, seasoned businessmen and business women. In previous such meetings, I didn’t always seem to get across the point that our bras served a very specific purpose and that the wireless bralette dujour in the major market wasn’t always an answer for us reconstructed ladies. They were inspired and moved by my story, but they weren’t ready to pull the financial trigger. The need, pardon the pun, wasn’t sexy enough for them.

So, I made the decision to switch it up. A mastectomy is an amputation, and I was going to present what that looked like and what breast reconstruction looked like. I figured people were still considering it a nice perky boob job by a cosmetic surgeon, rather than a radical amputation with a permanent prosthetic done by a plastic surgeon.

I can honestly say even I, at first, thought it was a little jarring — seeing the images purposefully juxtaposed within my presentation. And I lived through the ordeal! The stitches from a TRAM Flap surgery and expanders with drains do resemble carnage. Because they are carnage to a certain extent. Body parts have been removed. Skin and tissue has been moved around. There is blood and scarring. I shudder because I remember the pain, the insecurity, the emotions and the fear surrounding my own surgery and brutal chemotherapy.

But to see this room full of men and women recoil and grimace at those same images and constructively suggest I remove them from further presentations made me angry. Many of us have looked like those pictures and it is not only what saved our lives, but it was also a decision we made as young survivors because it was what we wanted. No one questions an amputee if they choose to have a prosthetic, an implant or nothing at all. No one tells Aimee Mullins not to change her legs on a TED stage. Why is someone telling me to put away the foobs?

Why is Facebook telling women to put away the foobs?

Why is there backlash against women who choose to get foobs?

Why are we not talking about the exhausting process, physically and emotionally, a woman goes through to get her foobs? (And while we’re at it, that sometimes the foobs fail, the surgeries linger over years, the implant doesn’t take and the woman on the other end of the ordeal is scarred not only on her body, but along the lines of her fractured self-esteem?)

So I encourage you to talk foobs. To tell your story in the comments. To share this story on Twitter or Facebook and explain to others what your life is like with foobs and WHY you decided to get them.

In this process and life that is cancer, whether you are newly diagnosed, in treatment, in maintenance, stable, NED or still living with it as a chronic, terminal illness, we all start at the same place. Terrified and wearing an open-back itchy hospital gown. We continuously think about what, if anything, the future holds. And we go into warrior mode and one day wind up searching for someone who can tell us, “Me, too!”

To all of you card-carrying members of the Friends of the Foobies club, I am saying to you “Me, too.” Let’s get start talking about it.

So maybe one day we’ll be sitting in a movie theater or flipping through a magazine and we’ll see one of our celeb recon sisters brave enough to go topless or have a sex scene with her own body. And the audience won’t recoil in horror because we made the difference by starting that conversation and being the pioneers.

***

A huge thank you to Dana Donofree for sharing her thoughts on body image and helping to start an important conversation to help empower other young women affected by breast cancer!

To learn more about body image, check out the resources below:

Living Your Best: Quality of Life

Newly Diagnosed Navigator

Post-Treatment Navigator

Long-Term Navigator

Metastatic Navigator

 

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June Research Round-up

Staying on top of recent breast cancer research news, especially when it pertains to young women, is essential. It is also important that young women participate in ongoing research so that our population is well-represented in data and the results meaningful to young women.

We pulled together a number of recent research articles and ongoing studies or surveys that may be of interest to you. Be sure to follow us on Facebook and Twitter, as we post new articles and studies as they become available.


Studies Seeking Participants:

Metastatic Breast Cancer Project
YSC is an advocacy partner in this unique research initiative that will help to transform our understanding of metastatic breast cancer. If you have metastatic breast cancer, join a nationwide movement of over 1700 patients, doctors, and scientists by sharing your tumor samples, your medical information, and your voice. Together, we can speed the development of future therapies.


New Research Opportunity for Spanish Speakers!

Eres Latina y vives con cáncer de mama metastásico? Por favor tome nuestra encuesta acerca de su experiencia con su proveedores de cuidado de salud cuando le diagnosticado po prima vez metastásico o etapa IV?

English Translation – Are you Latina and living with metastatic breast cancer? Please take our survey about your experience talking to your health care team when you were first diagnosed metastatic or stage IV.


Sexual Adjustment Throughout Breast Cancer Diagnosis and Treatment
This study is to learn what women affected by breast cancer are feeling about their bodies, their intimate relationships and sexuality. Open to all women diagnosed with breast cancer.


The Impact of Chemotherapy and Radiotherapy for Breast Cancer on Cognition and Functional Performance
This study is to find out how cognition and the ability to do everyday activities changes in the 6 months after the completion of treatment for breast cancer. Open to women nearing the end of chemotherapy or radiotherapy.


Share Your Experiences with Insurance Coverage of Hereditary Cancer Services

Complete this survey and help FORCE understand the current landscape for insurance coverage of hereditary cancer-related screening and preventive services. We want to hear from you if you have had difficulty getting insurance coverage OR if your insurance has covered everything OR if you don’t have insurance at all.


Recent Research Results:

Two Years of Adjuvant Tamoxifen Provides a Survival Benefit Compared With No Systemic Treatment in Premenopausal Patients With Primary Breast Cancer
The aim of this study was to evaluate the long-term effect of 2 years of adjuvant tamoxifen compared with no systemic treatment (control) in premenopausal patients with breast cancer over different time periods through long-term (> 25 years) follow-up.


Outcomes Matter: The Power of Prospective Outcomes

A recent SEER-NCI study looked at outcomes data of over 44,500 breast cancer patients who had Oncotype DX testing and found that at 5 years, patients with a recurrence score less than 18 had an excellent breast cancer survival rate using hormone therapy alone (no chemo).  Breast cancer specific mortality was less than .5% in node negative patients and 1% in node positive. For Infographic: Prospective Outcomes Infographic


Exercise Reduces Cardiovascular Risk in Nonmetastatic Breast Cancer Patients

A recent study showed that exercise reduces the number of cardiovascular events in nonmetastatic breast cancer survivors. Those patients adhering to national exercise guidelines (about 9 hours per week) had a 23% reduction in the risk of cardiovascular events.


Boston College Women’s BRCA Study
Dr. Sharlene Hesse-Biber at Boston College is conducting a study about the genetic counseling experiences of women who are BRCA positive. Through the Boston College Women’s BRCA Study, they hope to address the substantial lack of research on the ways that women deal with a positive test result for the BRCA 1/2 gene mutations. This project will make a significant contribution to understanding of individuals’ experiences with genetic testing, how this impacts families and relationships, and how genetic counseling should approach the BRCA experience for women. If you have any questions please contact hesse@bc.edu.

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Categories: News & Updates

Happy Father’s Day!

This Sunday is Father’s Day and we’d like to take time to recognize the important role father figures serve in supporting the young women in their lives facing breast cancer. These men are there for you from diagnosis through treatment and beyond. They offer a shoulder for you to cry on, a hand to hold when you need strength and their undivided attention when you need someone to listen.

Thank you to all the amazing co-survivors out there for ensuring young women aren’t facing breast cancer alone!

JM Quote

Grace Quote

Nicole Quote

Michelle Quote

Did you know that we also offer support for co-survivors?!

We understand that breast cancer doesn’t just affect the person diagnosed, it also affects the people that surround and support them. We offer a number of useful resources and tips to ensure you’re receiving the crucial support you need to help you in your vital role as a co-survivor and caregiver.

– Caring For You
How to Help
Handling Finances
– Get Involved
Caregivers’ Bill of Rights

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